By admin April 17, 2019 05:31

Awareness and cure for Hemophilia

  • 17TH April is celebrated as World Hemophilia Day.
  • There are about 17000 cases of haemophilia in India.
  • Government is taking many measures to address the problem like emergency treatment, demand therapy and awareness through television, radio etc.

What is haemophilia?

  • Haemophilia is usually an inherited bleeding disorder in which the blood does not clot properly.
  • This can lead to spontaneous bleeding as well as bleeding following injuries or surgery.
  • Haemophilia is caused by a mutation or change, in one of the genes, that provides instructions for making the clotting factor proteins needed to form a blood clot.
  • This change or mutation can prevent the clotting protein from working properly or to be missing altogether.
  • It occurs in males and females act as a carrier for the disease.
  • Though is a genetic disorder it is not necessary that it may be carried forward to the offsprings.
  • The mutation can also occur spontaneously at a later stage in life. The chances of the occurrence of such cases are 30%.


  • The disease can be divided into three categories
  1. Severe haemophilia
  2. Moderate haemophilia
  3. Mild haemophilia
  • A multi-disciplinary approach is used for the treatment of haemophilia involving specialists, physiotherapists and nurses.
  • There are two types of treatment – home therapy and special therapy
  • In-home therapy, during bleeding, the pressure is applied, then the part is allowed to rest followed by application of ice and compression and then the part is kept elevated.
  • Strenuous activities like sports and collision of the part should be avoided.
  • The dosage of the medicine provided depends on the type of disease.
  • Then rehabilitation therapy is provided.


  • Underreporting of cases
  • The screening for haemophilia patients is not included in the government programme due to which many cases are undiagnosed or diagnosed at a later stage.
  • Unawareness of the disease among the people
  • Treatment is expensive which cannot be afforded by many people.

Way forward

  • The government should include the screening of people for haemophilia and keep a follow up of them so that their children are tested and diagnosed at an early stage itself.
  • People can resume normal life if the disease is diagnosed at an early stage.
  • The celebration of world haemophilia day would create awareness among the people.

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By admin April 17, 2019 05:31